The moment your baby is diagnosed with Down’s syndrome, the universe injects you straight in to your heart with the most powerful drug known to man; let’s call it “Enhancenon”. In small quantities, this drug causes happiness, joy, euphoria, but an overdose of Enhancenon of this magnitude has some profound side effects on 98% of the population. Side effects that might be experienced vary vastly in each individual but can include any or all of the following:

Stage 1

Rage, fear and sadness – in any quantity. These emotions are so enhanced you might feel like you want the world to swallow you up. You might feel you want the world to swallow your baby up, just to make these feelings go away. You might cry uncontrollably or be furious beyond anything you have ever felt before. You might feel grief – this baby is not what you had planned.  Don’t fight these feelings – they are all a side effect of the overdose. They are not your fault and they certainly are not something that you can be expected to control at this time.

Stage 2

Heightened awareness – suddenly everything you hear is “Down’s syndrome”. Friends especially will relay stories of knowing or having come across a person with Down’s syndrome. The diagnosis becomes a hot topic. Your eyes and ears pick up and seek out anything linked to the diagnosis and hawk-like you will see and hear more than you have ever done before. Our advice at this time – FORGET everything you have ever heard before or any assumptions you are making now. Your perception will be skewed, the overdose is still coursing through your veins.

Here are some “real” examples of life:

Kelle Hampton

Noah’s Dad

Stage 3

You will be delirious and think you are a fortune teller – you will look to an unknown future and think you know what is coming. You will see and plan a future that you *think* is waiting for you. Try and ground yourself at this point. Without this diagnosis you would be marvelling at your baby’s tiny fingers and tiny toes. You would be happily examining nappy contents and laughing at baby farts. Try and pull yourself back into the here and now and do these things. The hallucinagenic qualities of the drug is strong, but resist the temptation to to map a future for yourselves and your baby which is no more possible now than it might have been without the diagnosis.

Stage 4

The “fix” – you might become obsessed with googling… obsessed with finding ways to help your baby. Drugs, physio, speech and language, portage, tests, vitamins… STOP!!! Enjoy your baby. You cannot cure Down’s syndrome and right now, your baby is a baby and needs you. Deal with the here-and-now. Deal with any proven medical problems, but the rest should be as it would have been without the diagnosis. Cuddles, cuddles and more cuddles. Let your baby lead the way and it will all fall in to place.

Stage 5

Opening doors – as your confidence grows, the drug allows you to step outside your comfort zone and make some connections. Slowly, there might be a little prick of realisation coming through the fog that this baby is opening your eyes to something which is new. It might be frightening, it might be uncomfortable at first, but out there is a whole multinational, multicultural family waiting to embrace you.

Future of Down’s

FoD Facebook Group

Stage 6

Delirious pride – when you have reached this stage, your body has almost metabolised the drug enough to function normally again. You will see your baby smile or sit up or roll or put food in his or her mouth and your heart will burst with pride. The pride will come from so deep inside that it might make you weep. The pride will be so much more enhanced than if your child hadn’t had the diagnosis. Now the fun bits begin and your eyes will sharpen and you will see your baby! Days will come and go and the diagnosis will not be at the forefront of your mind, your baby will be!

The End

But really, the beginning…

This is the start, the start of your very amazing, wonderful journey together. The day that life overtakes fear, the day that love overtakes presumption. Enjoy it.

We think you might have twigged by now, but in case you haven’t…
Once your body adjusts to the huge levels of this drug, your mind comes in to line and your soul stops throbbing with pain and uncertainty, you will look into the eyes of your child and realise that this IS the child you always wanted. You will feel much more at peace, much calmer. The fact of the matter is that occasionally, Enhancenon will still cause flare ups of any or all of the original side effects, but for different or altered reasons. As for what Enhancenon is… it is pure, undiluted love. When you finally adjust to this new life, you will realise how much better it has become – all because of this little, tiny, unexpected diagnosis which means so little in the grand scheme of things. You will end up feeling grateful and realising that you have so much more love in your life now than you ever did before. Thank the Universe.

What to say when a baby is born with Down’s syndrome

Down’s Syndrome Association

AUTHOR: Helen Kingdon

January 2013 – All Rights Reserved.